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SMi's 8th Annual Orphan Drugs and Rare Diseases Conference returning to London in October 2018.

This year’s SMi will bring together regulatory agencies, pharmaceutical companies, non-profit organisations and orphan drugs developers to construct an agenda that addresses the driving economic factors, policies and issues that will affect the development of orphan drugs globally including commercialisation, policies, reimbursement, and pricing.

 

 

Despite the recent growth in the orphan drug market, the processes leading to the approval of orphan drugs is still complex and includes many challenges to overcome, such as regulations and sustainability. With the global Orphan Drug market expected to grow to $169 billion by 2020 there is a constantly growing awareness and interest for this industry, enabling more research to make a difference in patients’ lives. SMi’s Orphan Drugs and Rare Diseases conference will once again bring together some of the leading senior industry professionals to network, learn, and discuss current issues in the rare disease industry.

Join the Orphan Drugs and Rare Diseases community this year in October to keep up to date with the industry and to learn from our expert speaker panel, bringing you important new case studies and reports on this year’s relevant topics.

Topics include: Clinical development of treatments for rare disease, innovative funding partnerships, synergies between regulators and health and technology assessors, cell and gene therapy, patient self-diagnosis, patient recruitment and patient-centric research, patient access and access to patients, regulatory guidelines, strategic partnerships, pricing and reimbursement, patient advocacy groups, real-world evidence, etc.

 We Are One of A Kind...

Networking: We keep networking at the forefront when it comes to our attendees. Expand your community with every part of the industry and with the right people to benefit your company and develop your career.

The Agenda: Be sure to have your pen and pad ready at all times! A valuable time is spent to discover the latest trends and hottest topics in the industry to provide the best possible agenda for our attendees.

Onsite: Our knowledgeable events team will provide you with an exceptional service onsite. They will answer any questions you may have and inform you about any changes to the agenda.

Join our expert speaker panel at the 8th Orphan Drugs and Rare Diseases conference to ensure you do not miss out on the latest developments!




 

Speakers and delegates will include CEOs, CSOs, CMOs, VPs, Senior and Principle Scientists Researchers, Scientists, Medical Doctors and Professionals in the fields of:


• Drug Discovery & Development
• Personalized , Translational, Stratified, Regenerative and Experimental Medicine
• Cell / Molecular Biology
• Molecular Diagnostics and Diagnostic Development
• Cell / Gene Therapy
• Rare & ultra-rare Diseases
• Genetic Diseases
• Metabolic & Gastrointestinal (GI) disorders
• Haematology
• Immunology
• Endocrinology
• Cardiovascular and Respiratory disorders
• Cancer / Oncology
• Market Access
• Pricing & Reimbursement
• Patient Advocacy
• Regulatory & Medical Affairs
• Commercial Development
• Bioinformatics
• Big Data
• Digital Health
 

Previous attendees include: Action Duchenne; ADB Medical ; Alexion Pharma GmbH; Apex Healthcare Consulting Limited; Applied Pharma Research Sa; Ataxia UK; Birmingham Children's Hospital; C2AM; Cambridge Rare Disease Network (CRDN); Chiesi Farmaceutici S. p. A.; Chiesi Farmaceutici S.p.A.; Chiesi Ltd; Costello Medical Consulting; Deutsches Krebsforschungszentrum; Findacure; FORTRESS BIOTECH; Healx; High Force Research; Idorsia Pharmaceuticals Ltd; LifeArc; MEDExpansion; Mereo BioPharma Group Limited; myTomorrows; National Institute for Health and Care Excellence; Personalize My Medicine; Philip Chapper; Sanofi; Santhera Pharmaceuticals; Santhera Pharmaceuticals Ltd; Sciad Communications Ltd; Selecta Biosciences; Summit Therapeutics ; TCR Solutions; The London Bioscience Innovation Centre; The Medical Research Network; TranScrip Partners LLP; UCL; University College London; University Of Groningen; University Of Sheffield; Vertex Pharmaceuticals; Voisin Consulting Life Sciences.

FEATURED SPEAKERS

Xavier Ortega

Xavier Ortega

Project Manager, Rare Diseases, Minoryx

Nigel Nicholls

Director and Country Manager UK/Ireland, BioMarin Europe Ltd
Nigel Nicholls

Nigel Nicholls currently serves as the Director and Country Manager UK/Ireland for BioMarin Europe Ltd. He has held senior positions in clinical research, international marketing and country management for Pharmacia, Rhone Poulec Rorer, Schering AG, Orphan Europe, Jerini AG and BioMarin Europe Ltd.

He completed his MSc (Surrey) and MBA (Bath) postgraduate degrees with a focus on the ethics and economics of orphan drugs. He was formerly a trustee but is now a patron of Contact a Family.
 

Xavier Ortega

Project Manager, Rare Diseases, Minoryx
Xavier Ortega

Xavier obtained a PhD in Biomedicine, a MSc in Neuroscience and Postgraduate Certificate in Project Management. He has proven record of 7+ years developing and managing R&D projects with a special focus on pharmacological therapies for neurodegenerative diseases. During those years he also participated in Neurotec Pharma to implement a Phase IIa trial for MS patients. He then worked at BioSystems S.A. managing and with direct lead on the development of IVD products that were successfully launched on the market. Xavier joined Minoryx in 2017 to align the projects with the business-driven strategy of the company.

VENUE

Holiday Inn Kensington Forum

97 Cromwell Road , London, United Kingdom

Holiday Inn Kensington Forum is perfectly situated in one of London’s most luxurious and beautiful areas within South Kensington. 

The hotel is just 2 minutes walk from Gloucester Road tube station for convenient travel to Hyde Park, London Eye, Tower Bridge plus more of London’s top attractions. There are also easy and direct links to some major transport hubs including Victoria, Kings Cross St Pancras, Paddington and Heathrow. 

This distinctive hotel in south London has so much to offer to make all guests really feel at home. The latest Holiday Inn relaunch is not just about the new look and feel for the hotel but to offer guests more benefits during their stay including a pillow menu for extra comfort during their sleep and a curved shower rail for more spacious feel. 

In addition to our 906 rooms, all business guests can take advantage of our meeting and conference facilities including High Speed Internet Access and unlimited Starbucks coffee at The Academy. Our hotel’s professional event planners are on board to help take the hard work and stress away from planning your next event. 

So whether you in London on business or pleasure, make the Holiday Inn London Kensington Forum your first choice of hotel and book your accommodation for our lowest internet rate guarantee. 

HOTEL BOOKING FORM

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Holiday Inn Kensington Forum

97 Cromwell Road
London SW7 4DN
United Kingdom

Holiday Inn Kensington Forum

Holiday Inn Kensington Forum is perfectly situated in one of London’s most luxurious and beautiful areas within South Kensington. 

The hotel is just 2 minutes walk from Gloucester Road tube station for convenient travel to Hyde Park, London Eye, Tower Bridge plus more of London’s top attractions. There are also easy and direct links to some major transport hubs including Victoria, Kings Cross St Pancras, Paddington and Heathrow. 

This distinctive hotel in south London has so much to offer to make all guests really feel at home. The latest Holiday Inn relaunch is not just about the new look and feel for the hotel but to offer guests more benefits during their stay including a pillow menu for extra comfort during their sleep and a curved shower rail for more spacious feel. 

In addition to our 906 rooms, all business guests can take advantage of our meeting and conference facilities including High Speed Internet Access and unlimited Starbucks coffee at The Academy. Our hotel’s professional event planners are on board to help take the hard work and stress away from planning your next event. 

So whether you in London on business or pleasure, make the Holiday Inn London Kensington Forum your first choice of hotel and book your accommodation for our lowest internet rate guarantee. 

HOTEL BOOKING FORM

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WHAT IS CPD?

CPD stands for Continuing Professional Development’. It is essentially a philosophy, which maintains that in order to be effective, learning should be organised and structured. The most common definition is:

‘A commitment to structured skills and knowledge enhancement for Personal or Professional competence’

CPD is a common requirement of individual membership with professional bodies and Institutes. Increasingly, employers also expect their staff to undertake regular CPD activities.

Undertaken over a period of time, CPD ensures that educational qualifications do not become obsolete, and allows for best practice and professional standards to be upheld.

CPD can be undertaken through a variety of learning activities including instructor led training courses, seminars and conferences, e:learning modules or structured reading.

CPD AND PROFESSIONAL INSTITUTES

There are approximately 470 institutes in the UK across all industry sectors, with a collective membership of circa 4 million professionals, and they all expect their members to undertake CPD.

For some institutes undertaking CPD is mandatory e.g. accountancy and law, and linked to a licence to practice, for others it’s obligatory. By ensuring that their members undertake CPD, the professional bodies seek to ensure that professional standards, legislative awareness and ethical practices are maintained.

CPD Schemes often run over the period of a year and the institutes generally provide online tools for their members to record and reflect on their CPD activities.

TYPICAL CPD SCHEMES AND RECORDING OF CPD (CPD points and hours)

Professional bodies and Institutes CPD schemes are either structured as ‘Input’ or ‘Output’ based.

‘Input’ based schemes list a precise number of CPD hours that individuals must achieve within a given time period. These schemes can also use different ‘currencies’ such as points, merits, units or credits, where an individual must accumulate the number required. These currencies are usually based on time i.e. 1 CPD point = 1 hour of learning.

‘Output’ based schemes are learner centred. They require individuals to set learning goals that align to professional competencies, or personal development objectives. These schemes also list different ways to achieve the learning goals e.g. training courses, seminars or e:learning, which enables an individual to complete their CPD through their preferred mode of learning.

The majority of Input and Output based schemes actively encourage individuals to seek appropriate CPD activities independently.

As a formal provider of CPD certified activities, SMI Group can provide an indication of the learning benefit gained and the typical completion. However, it is ultimately the responsibility of the delegate to evaluate their learning, and record it correctly in line with their professional body’s or employers requirements.

GLOBAL CPD

Increasingly, international and emerging markets are ‘professionalising’ their workforces and looking to the UK to benchmark educational standards. The undertaking of CPD is now increasingly expected of any individual employed within today’s global marketplace.

CPD Certificates

We can provide a certificate for all our accredited events. To request a CPD certificate for a conference , workshop, master classes you have attended please email events@smi-online.co.uk

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Contact SMi GROUP LTD

UK Office
Opening Hours: 9.00 - 17.30 (local time)
SMi Group Ltd, 1 Westminster Bridge Road, London, SE1 7XW, United Kingdom
Tel: +44 (0) 20 7827 6000 Fax: +44 (0) 20 7827 6001
Website: http://www.smi-online.co.uk Email: events@smi-online.co.uk
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